I spent Wednesday in Olympia with the Crohn’s & Colitis Foundation as they met with legislatures throughout the day sharing their stories and issues that are important to families touched by IBD (including my own). Advocating for state-based legislation that ensures treatment decisions are kept between the patient and their medical professional not the insurance companies.
Next year the group hopes to present a bill addressing those concerns. With ACA possibly on it’s way out the state might well end up being the salvation for those suffering from Crohn’s disease and ulcerative colitis in our state.
It was interesting to note that more than half of the members we visited (or their liaisons) had an indirect connection to someone suffering from the disease.
There is no question that CCFA will be a force in Washington – stay tuned!
Chrohn’s and Colitis Foundation Annual Benefit Luncheon April 27, 2011 ~ Hyatt at Olive 8 ~ Seattle, Washington
Once again I was on hand for the annual CCFA Luncheon where a wide variety of guests told their stories and expressed their thanks to the Northwest Chapter of CCFA. A lovely video presentation was created of images I had taken at Camp Oasis last summer – there was not a dry eye in the house!
Guest speakers included; Mike McCready of Pearl Jam (who shocked the nation when he admitted he was suffering from Chrohn’s disease several years ago); Andy Wappler whose father, weatherman Harry Wappler suffered with Chrohn’s for most of his life, with just a few confidants knowing of his illness) and Barbara Chaplin, recipient of the Mike McCready & Ashlley O’Conner Award this year. Barbara’s story is like that of so many others – shame and fear of having a life-long illness. Upon hearing of Lois Fink’s 5K run in support of people with IBD, she and her husband become involved with others who lived with the same illness. She became a CCFA board member, raising funds and awareness and hasn’t stopped since!
My sister has Chrohn’s disease and that’s why I offer my time and talent to this worthwhile organization that opened so many doors for her. Learning how to live life instead of the disease living life for you is a major hurdle many of these patients can conquer. Keep up the good work!