Crohn’s & Colitis Advocacy Day

I spent Wednesday in Olympia with the Crohn’s & Colitis Foundation as they met with legislatures throughout the day sharing their stories and issues that are important to families touched by IBD (including my own).  Advocating for state-based legislation that ensures treatment decisions are kept between the patient and their medical professional not the insurance companies.

Next year the group hopes to present a bill addressing those concerns. With ACA possibly on it’s way out the state might well end up being the salvation for those suffering from Crohn’s disease and ulcerative colitis in our state.

It was interesting to note that more than half of the members we visited (or their liaisons) had an indirect connection to someone suffering from the disease.

There is no question that CCFA will be a force in Washington – stay tuned!

Visit the CCFA on our Facebook page #IBDadvocacyWA!

Seattle Sister Cities Reception 2009

The 13th Annual Seattle Sister Cities Reception was held at City Hall on April 23rd.  Hosting cites included Gdynia, Poland, Nantes, France, Surabaya, Indonesia and Sihanoukville, Cambodia.  City officials including Mayor Nickels, Richard Conlin and Tay Yoshitani were on hand to welcome members of the Indonesian Consul General plus members of local area Sister City groups.  To view all images click here.

Highlights include: Robam Jun Por, Blessing Dance from Cambodia

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Philippe Savre performing music from Brittany
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2008 Best Single Project Award went to the Reykjavik Sister City group
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Vivat Musica of Seattle performed Polish folk songs
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GEMAS Dance group performed an Indonesian traditional dance
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